I’ve had a perfect weekend, well as perfect as it can be in the circumstances. I’ve looked after my son for 15 hours a night /day on Friday, Saturday, and Sunday and all week as it goes. I care for him every night of the week. That’s normal for me.
Not only have I done this and it’s pretty intense stuff but I have managed to complete a kitchen project in my home over the past few months (I’ll show it on another blog folks). It’s taken longer than I expected as there is only 1 of me and I have to spread myself out doing a number of ‘duties’ most of the time. I have had other responsibilities including getting a 63-hour package of support for my son up and running successfully.
I wonder though whether it strikes anyone else as odd that not many people like my son are on ‘the outside’ when they reach a certain age. The reason for that is Social Care they make decisions which are very unsuitable for many people with autism/learning disabilities. Many are placed in hospitals and institutionalized after stints in unsuitable supported living which ends up ‘costing too much’ so then the next stage is to ‘lock them up’ and throw the key away. I know there are many who benefit from supported living usually those who are more able, they seem to be the one’s who ‘don’t need’ as much support. Social Services normally under-estimate just how much support is needed until they have ‘acted’ and made ill thought out decisions which are generally based on ‘cost’ and then it’s too late to go back and say sorry.
I had an experience (1 of many actually) when my son was ‘school aged’ where I was ordered to attend an Education special needs Tribunal where the L.E.A forced my son to go to a special needs school which I knew from the past experiences of similar schools couldn’t meet his needs. 3 weeks later they were already saying ‘sorry we can’t manage’ leaving him without any education…Several years after he’d already had no education. How did this happen? Well, they kept excluding him. He was too active and they didn’t know how to handle him. They didn’t ‘care’ to know either as it took too much time. All they cared about was ‘looking like’ they were trying to find an Educational placement for him to ‘satisfy’ the Legal system. They weren’t successful in finding him a placement on and off for 5 long years. They were however successful in ‘getting away’ with their dirty deed though, that dirty deed being leaving him without any Education and leaving him 24/7 in my care without help at all.
Rather spiffing of them wouldn’t you say so?
Funny isn’t it how I’ve been the one who has managed him when I had ‘no training’ in the first place. I have been the one who never failed. It must be because I’m his mother? Actually, that’s not quite it. It’s because I’ve learned how to from a young age because I was left to it in a very cruel way and had to learn ‘how to’ when no-one else would even try to. I’m still managing 31 and a half years later.
No wonder I hate the way I have been treated by ‘the services’…I don’t think they like me either…