I should not be in a situation where I have to repeatedly go over my son’s care need with a Team who should know him well. It seems they don’t as they can’t even get his mental capacity correct. He may lack some capacity but he can make his needs known. For example, he can make his needs known like whether he’s hot or cold. Whether he is hungry or thirsty and where he wants to be. No-one should be allowed to use mental capacity as an excuse to harass and bombard the person caring for a loved one but that is exactly what L.A. do when they can’t be bothered to be actively involved.
My question is how can a Local Authority know a client or make decisions upon him if they have deactivated a social worker and the one he had previously didn’t visit him. How can they make important decisions on his care and justify those decisions if they aren’t actively involved? They can’t is the answer but all too often they do and they get it very wrong. It’s not a coincidence they get it so wrong there is a deliberateness about it and it’s all to do with not wishing to pay for care and an avoidance to re-assess care to ensure they make carer and the client wait as long as possible. All who are responsible go along with it.
Managers like Hook go along with it as do Group managers when they answer complaints about the team they are running. Apparently, the services have nothing to learn from my complaint but behind the scenes, they are learning from it. They are suddenly realizing it. Their stupidity in responses is becoming an issue for them because of the downright stupid things they are saying. For instance, they have said there’s no evidence I care for my son 100’s of hours per week when they are allocating respite. Even though they have stopped paying it into my son’s account it is still meant to be allocated. My son is on an 117 aftercare and they’ve had to allocate 9 hours support x 2 male carers but Mister Nobody continues care after paid care has left the building. There is no proof I care for my son 100’s of hours a day? Are there 9 hours in a day or 24?
Regarding the blatant breach of the Ombudsman’s decision in Feb.2014. It is complete craziness that they believe they will walk away from doing this without consequences. As yet there hasn’t been real consequences as all I’ve done is taken it back to the Ombudsman. That doesn’t seem to be consequence enough. It will be returning a third time back to the Ombudsman regarding no funds being paid in 2017. As this is yet another matter in the saga of deliberate defiance towards my upheld complaint logged in public as upheld in 2014 by the Ombudsman. I am still awaiting a second decision relating to their refusal to provide respite until 2016. Comes to something when I have to take the matter up with the Ombudsman a third-time doesn’t it.
I guess the delay with the Ombudsman is to do with what they have provided to him in their reply. The Ombudsman isn’t stupid I am sure he/she has more than certainly picked up on something isn’t quite right. I just hope they get a fair punishment in the coming decision. They should really have to back pay the whole of the respite they didn’t provide since the original decision.
I have received L.A. responses to myself over complaints made and the responses make no sense whatsoever. They must be desperate to even suggest they are right. For example, not upholding a complaint totally when they had dropped a matter of so-called ‘safeguarding’. Then responding to my complaint regarding the O.T. reporting safeguarding maliciously by telling me she had ACTUALLY been the responsible person who had made the complaint. Not only was it admitted but she had conferred with a member of the Health Team (A nurse working with my son) and also the previous agency before she the O.T had come to my home to supposedly carry out an assessment. Do you think I have seen the outcome to this assessment? No not in 3 months since.
I mentioned in a previous blog she O.T. came in privately funded by Social Care with a pre-agenda. They had basically discussed the intention to make a set-up a safeguarding referral that the O.T. was then going to action on her visit regardless and she did do that. It was a petty excuse for a safeguarding visit which could only be made in reference to the particular day she came. Yet it was discussed several weeks beforehand.
The nurse is fuming she has been ‘grassed on’ by Social Care. I would be if I was the nurse especially as she came out a few weeks after pretending she was so shocked and horrified by what Social Care had done. They had done a dirty deed of sending a safeguarding team out. I never realized her reaction was really due to the fact they had been sent out to no avail as well. Clearly, it was wasting time ‘safeguarding’ where they could have been better placed that day. 3 hours of their time and mine to amount to nothing. Because there was nothing to safeguard. It was a set up they couldn’t work on. Utterly stupid.
And now I have the nurse busily trying to justify herself alongside one of the other members of my son’s team. Apparently attempting to use his position to back her up. It appears to be the case as ‘they’ want to meet to explain their position together forever, relating to ‘the temperature of my house’. In order to ‘back up’ a colleague. I would have first thought they’d need to be coming in the home regularly and it’s not been the case especially in the backup merchants case. It’s amazing the type of professionals I have working in my son’s interests. A self- appointed set of weathermen and women it seems. Not trained one’s either and it really isn’t funny to have a Team like this working against my son’s best interests and also trying to make my life difficult caring for him while they hold him on an 117 section.
What can I say besides I better brace myself with a thermometer on all their future visits and quickly devise a chart they will have to tick ‘n’ sign to agree what the temperature is on arrival here…Can’t say fairer than that can I? Sure it sounds stupid but trust me you can’t take chances with a Team scorned. Some team they are and hardly pros at the job either. I’ve seen better panel beaters to be fair. And talking of panel, why haven’t they take my requests to panel yet is more to the point. Such commitment is shown …clearly not! However, all evidence is gratefully received. They need to be taken to Court and shown for what they are.
On the bright side, this weather chart they’ll need to fill each and every time they come here can easily be incorporated into an interesting pictorial weather chart for my son. To present to them on arrival. It may also encourage their interaction with my son for once in a positive way. They may actually get to know him properly then as it will be part of their ‘meeting at my home’ routine and they MIGHT realize he’s actually worth their time…and effort. Okay, it’ll need a lot of working on. Can’t expect miracles all in one go…I’ll see how they go…
I’m working really hard with my son and enjoying every minute of it especially lately. I am installing a sensory room complete with the hot tub I bought my son for Easter, and I’ve had no help from team Hook or her counterparts. Rather they have been determined it wouldn’t happen since last summer.
Last summer I attended an aftercare meeting where they wanted to sit and discuss everything outstanding on the previous C.P.A. meeting which is a requirement of Law even though they hadn’t completed most items on the list from the standard annual meeting the year before or that year previously many years ago. I’m sure they had the meeting timer set to end at exactly a minute past a freckle. They were horrified I turned up. They do have to invite me but I’m sure they’d rather I didn’t attend. However, my name is not Social Care. Hooks team very often don’t turn up being the lead of my son’s aftercare and when they do they aren’t the fastest jockey in the horse race game and will often come in last. They got stuck at ‘traffic lights’ for 20 minutes just 20 metres from the venue last time I’m sure.
Anyway never place a bet on a 3 legged horse as you will lose your money.
It’s not just the 3 legs you need to worry about either as chance would be a fine thing as they are programmed to say nothing if possible especially to anything that might require co-operation. They are not into new experiences and I gave them one at the last meeting, the hot tub.
On mentioning it this was the point all hell broke loose.
Members of team Hook took to the frontline to ‘stage’ their objections to a plastic blow up hot tub and the counterparts took up their chess positions shuffling into a supposedly ‘check-mate’. The frustration on their faces would have been worthy of an Oscar Award. Seriously I missed my chance of taking a photo and making it an internet hit. In chorus, they all said a resided NO and the meeting ended swiftly at the same time as usual.
In my language, no means yes and now I’m paying for it myself there’s a sudden change of heart. It called Shock & horror and the game is no longer chess. I guess with the unanimous ‘lack of support’ given since I was forced to become an employer for my son’s care package they didn’t think it possible in reality. The plan they set up was that my time would be fully taken up trying to juggle the lack of funding for Personal assistants.
It is true it has taken most of my time up and it’s almost ‘that time of the Month’ where I fill in by hand the timesheets for 3 P.A.’s without any help and become a mathematical genius calculating up all the figures so they get paid correctly. Meanwhile, I don’t get paid as I am one of the ‘slaves to the system’ by circumstance and sometimes it really sucks.
Workers ‘have right’s’ whereas ‘slaves to the system’ do not even though there is ‘The Care Act’. It is an act based on a silent movie, it called being ignored. That is what is happening right now as in ignoring the peasant as she will go away. No, I won’t and I’m an educated peasant as it happens, not just an ordinary run-of-the-mill peasant either.
Unfortunately, I can talk for the United Kingdom & all the States of America so the matter will never be dropped by those afflicted with the mute button. I love my job and it becomes ever more creative as time goes on. I haven’t just got my son’s sensory room to focus on as my mind is branching outside as well. I have cared for my son for 31 years so I know him better than anyone. I know how to stimulate his mind and hopefully rid him of complex seizures or as best I can. I know I’ll have opposition from ‘professionals’ who don’t care less and who are type o negative to keep him in their clutches for a job. They have failed my son whereas I haven’t. Whatever barriers they put up in the future could never be more obtrusive than those put up in the past. There are no more NO’s that can prevent progress and no amount of ‘faking’ that can take place to ‘pretend’ they are there ‘supporting’ my son. They aren’t, they haven’t been and they think I’m bothered…not even slightly.
Several professionals have come to my home this week. One sat with me in the kitchen on Monday for an hour while the other one sat in the lounge for 1 hour 30 minutes where my son was also sitting on Tuesday this week. It’s not difficult to work out which one works with my son and which one doesn’t is it? As one actually saw and chatted to my son in his natural surroundings and complimented myself and carers on the care given to my son and the other one sat in the kitchen talking tick charts besides going over the same old that’s been done at least 1001 times in the past. Now wants to bring tick charts in 2 weeks time. I can’t wait as they will be the ‘answer’ to how many seizures my son is having.
At least ‘just checking’ which is a movement sensor isn’t being installed all over the house linking everyone’s movements on it’s ‘on-line’ site. Apparently, it is not intrusive when it’s left in your house for a month in 5 rooms and the hallway with 2 door sensors. Yet another of Hook the manager’s money wasting ideas at £90.00 a throw. I can only imagine these ‘little miracle workers’ are installed in 1000’s of homes around the U.K. under L.A. intimidation procedures.
Fortunately not in mine.
I have undergone many decades of intimidation processes and interrogation processes by L.A. in the past while I’ve cared for my son and so has my son by being detained and deprived of his liberties for 17 months in a hospital ‘locked’ door setting on the half-derelict site of the hospital where he was born and caused his disabilities. He was held there under section 3 of the Mental Health Act due to lack of respite facilities available at the time…He had to be sectioned BEFORE he was allowed a respite stay, the reason being IN CASE HE JUST LEFT the setting. I could sign him out though but of course, my son couldn’t leave for 17 months as the consultant barred him from leaving at the 11th hour on the day. The Consultant had until 6 pm to ‘bar’ before my son was released and he did bar at 5.55 pm on that said day. Little wonder really why I have little faith in the bully boy system. Just checking is another one of the bully tactics used by L.A. to justify ‘cost cutting’ at the client’s expense in care. It’s worth £90.00 to them.
To the client, it’s worth jack zero in my opinion.
Hook did her best to intimidate me over the phone a few weeks ago to have ‘Just Checking’ installed, with her high pitched yelling down the phone or you could call it screeching if the tone was more feminine. It consisted of, ”You’re not co-operating with us!”
Even to think there is more than one Hook is frightening to even imagine but Hook had used the ‘us’ word. To be fair though I am yet to gain any co-operation from them or the ‘Hooks’. So until which time I am not getting paid to ‘co-operate’. Hook had to be reminded I don’t work for her team and therefore I won’t, wouldn’t and can’t. I think Hook shot herself in the foot as the phone went suddenly dead my end.
She may need to consider ‘anger management’ sooner rather than later. As that would be more useful than the role L.A. currently pay & wage her for as a manager. Which is a total waste of money, in my opinion, paid for from the public purse I might add.
It’s amazing how the L.A. can fund ‘Just Checking’ into 1000’s of homes each week but not provide carers with a bi-annual carers grant for a ‘break’ in 2017/18 in Birmingham U.K. Just brilliant the way they waste public funds on small gadgets unlikely to help 99% of the client population. I’m sure Just checking is great for the 1% that may get assistance after it’s installed but for the rest, it’s simply a new ‘tool’ to justify ‘cutting costs as that’s the main purpose of installing it in the first place.
I believe in ‘The Secret’ but I’ve actually never watched the film or read any of the books. In fact, I haven’t even read the on-line site fully but I believe in what I think is the basic concept of ‘The Secret’ which is positive thinking. I truly believe you can get anything you wish for under the belief it will happen. You can’t explain how it happens but it does against ‘The law of averages’.
That’s impossible you may think. I used to think it was impossible but then I tested the theory out and now I can use my mind to make things actually happen. I focus on what I want to happen in the future sometimes without much effort involved and not actually knowing that the pure mention of it will happen maybe 18 months to 2 years later and I have managed to get what I have had in my mind previously when I look back at what I’ve mentioned in the past. It’s quite amazing.
Now I’m hoping I don’t get ‘grumpy cat’ as I posted a number of him last night in my previous blog. Mind you he’s quite cute in his own little way.
The truth of it is Grumpy cat is in play before I found out about it although I’ve seen it around the net before. That one above means I’m going to Court about something in the future and I will win my case.
The one below means ‘the other party’ will think they’ve won their case but they won’t because stupid sees and stupid does. What can I say? You can’t educate…. people who think they are already educated in one subject can you? Multi-tasking is a woman’s job but some can multi-take better than others.
The problem is they don’t. So…
Yeah, I guess I’ll have to hold my hands up to that one as I left the bag of idiots open and they ran back in only to find they didn’t fit back in the bag. This is the problem with today’s packaging, isn’t it? You order something like a settee, it comes in a four by four box. Once opened it springs out into an eight by eight and once built up it’s a ten by twenty. Then you realize it only has three legs so to avoid packing it back up you take all the legs off it and pretend you ordered a futon instead and place it in the lounge. All well and good but then someone mentions it doesn’t pull out…into a bed.
It’s not meant to, is the correct thing to say and if you mention it’s an irregular futon then it becomes ‘more popular’. You’ll only get stuck for an answer if they ask where you got it from…In which case…You have the last one ever made.
They don’t make idiots like they used to….one idiot no longer fit’s all.
Back in my day, you could tell an idiot a mile off, but nower days, they could be wearing a suit ‘n’ tie and well as a shell suit with a shirt or even a ski jacket with a swimsuit, you just don’t know what to expect. I do like the unexpected myself, life is never boring that way.
Believe it or not, those are very positive statements above. They may look negative but looks are deceiving.
Today has been extremely productive indeed there has been movement ahead for the future. There was a lot of activity in my home this morning all on the positive side. This is time to achieve goals and they have been coming in fast & furious I have to say.
It’s strange isn’t it how negative people are the force behind all things positive. All the negative interactions that Social care, in particular, has waged against me while I care, for my son have not created the stagnation that was hoped for. The very idea that ignoring would prevent me from moving on with plans for getting my sons care right for his future are backfiring on the ignoramus’ and it will be a spectacular display once this comes to the forefront and it will.
They can sit there and refuse to answer all they like now and continue to say…
when they so decide but now they have passed the legal threshold and there is nothing they can do to rectify what hasn’t already been illegally auctioned. I have been too busy to act immediately as in I have been particularly busy in ‘being left to it’ and arranging my son’s care meticulously without assistance. Meanwhile, they have ‘been busy’ launching ‘blanks’ in the true sense of the word.
It wasn’t me who said lunch it was they. In fact, it was lunch time every time I tried to contact them to sort matters out and it’s been a very very very long lunch. It wasn’t me who said launch either again it was them in the form of the ‘sending of LA safeguarding’ for the reason of someone saying ‘my house was cold’…in March…Leading to a ‘cold call’ and an unannounced 2/3 hour visit I patiently had to tolerate…and they found no icebergs so kindly ‘dropped the matter’ but that doing has given me incentives now.
If they’d of picked November, December. January or February to drop in, the heating would have been on…not that I can afford it really as I’m unpaid as a carer. They are very aware of that but still they ‘think’ they have the right to shout orders…in more ways than one.
The early hours of yesterday morning were quite tough for me. Nothing has changed really it’s the norm and has been all my life caring for that matter. My son had a seizure in the early hours and he was very loud. The morning had broken that’s for certain. It started at 2.00 am and the aftermath caused it to last until 4.30 am.
My son had had a seizure and he was so distressed as it was going on he thrashed about in his bed screaming ‘like he was literally fighting ‘something’ for at least 20 minutes. During that time I was unable to gain entry to his bedroom as he was hallucinating and even trying to talk to him was making it worse and intensifying the situation. He wasn’t with it and nothing can change that once it starts. When he had calmed down a little it was possible to enter his room and not before. This is not new this is something he goes through very often at night and has done so for most of his life. He is brain damaged, there is no cure.
Eventually, when he had calmed down a little it was possible to enter his room. I put his light on and he cried intensively, shaking like a leaf. He shifted up the bed as he wanted me to comfort him. I hugged him tightly and reassured him it wasn’t his fault. He was saying sorry which he always does. I wiped his eyes and he blew his nose and I continued to reassure him everything was okay now. It’s heartbreaking situation as he can’t control the terror associated with these seizures and it is pure terror he’s experiencing. An intense feeling of terror, he can’t prevent happening and terror he never knows just when will happen either.
No-one can ‘take it away’ no-one can stop it happening. No medication can stop it happening many have been tried and unfortunately medical science does not hold an answer to a cure. It is very technical and very complex to deal with.
I’ll describe just how complex it is from my point of view as the one who has been and is caring for my son for 31 years. It is more difficult than learning to walk a tightrope without a safety net. Most tightrope walkers learn very young how to perform the skills of ‘walking the tightrope’ and only then are they skilled enough to be able to balance without falling off.
I have learned the skills of caring for a complex combination of disabilities and mastered them enough never to fail to be able to deal with the extremes of what my care entails for my son even in the early hours.
It really is a mystery how Social Care don’t think before they answer a complaint. I’m still searching for the missing link to fathom out exactly how they believe they are ”going to get away with it”.
It surely is a sad state of affairs when they confuse a ”Carer’s Assessment” with an ”Assessment of a client’s Direct payments. In this case, it is my son’s ”assessment” which was never done by his allocated Social Worker in 2016. She came to my home twice only in the 18 months she was allocated as my son’s ‘Social Worker’ to perform a Carer’s assessment for me. The first time she came out she didn’t do it properly though I spent near on 3 hours with her ‘filling out the forms’. This is why she had to re-assess and she still didn’t get it right.
Now she and ‘Hook’ have blatantly lied to the ‘Group Manager’ and ‘groupie’ has gone along with it quite knowingly and sent me a load of gibberish to her reply to my complaints. Stupidly Hook thinks she has an alibi as she thinks she’s convinced ‘ The Social Care Pow Wow’ with a group hug no doubt. What makes me laugh is how easy it is to ridicule the outcome. Hook herself stated in writing complete with a double-barrelled auto signature that the assessment of Direct payments for my son ‘was done on the phone’ but then I question was it really ‘done’ via telepathy as my phone never rung.
Whatever it is, it’s a mystery.
There is another mystery and that is who looks after my son between 10 pm on the night right until 1 pm in the afternoon as ‘the groupie’ said in her ‘findings’ that ” The comprehensive support plan implemented by health & social care does not provide any evidence of me providing 100 of hours caring for my son. However each day & night for 15 hours there is no evidence of any care being provided by an outside agency. However, they have allocated respite for those hours they say for 42 days a year. Only they haven’t provided all the respite they stated they have and that is evidenced in the financial report for 2016/17 given to me by ‘the trust’ handling the accounts. It is almost 3,000 less than what 42 x 15 hours costs. Why are they giving respite if there’s ‘no evidence of me providing 15 hours a night/day of care for my son?
That is a very good question, isn’t it? Only not one I expect answered this side of the century. It is as it is, though shouldn’t be.
Hook plays dumb most of the year when she’s ‘working’ and getting paid as a manager of a learning disabilities team and trust me she definitively doesn’t work on my son’s case much of the time.
”Nobody needs 24/7 care” she told me ‘bellowing over me’ on a phone call I made at my expense to ‘talk’ to her about the situation as a whole. Hook gave me 10 minutes of her time bellowing abuse to me down the phone and ‘threatening to cut me off’ the call I was paying for. A situation Hook has left festering for month upon month this year. Hook really has no choice but to rectify matters either despite her ‘bellowing’ attitude.
In fact, she thinks she knows my son so well she could ‘easily replace me’ as a very experienced & very underpaid caregiver … that would be according to her own imagery ‘Chronicles according to Hook’ that no-one else ever read or reads except her Group Manager and fellow Social Worker and they all have separate ‘Chronicles’ which don’t match any jigsaw puzzle known to man or woman. The pieces simply don’t fit and it reminds me of ‘The ugly sisters’ attempting to fit into the Cinderella shoe without success. I am a different type of Cinders as in I have to ‘leave the ball’ much earlier. Before 10 pm or my coach becomes a…. ‘Banana Split’.
I also care for my son alongside paid carers during the day. I am a key member and unpaid worker of the day crew. Without me at the helm, my son’s care wouldn’t be such a success.
My son had a conversation with me the other day about why he doesn’t like Mc Donald’s fries. I instigated the conversation and he replied properly for the first time in 31 years without a one-word repetitive answer. That may not seem like a big deal…but it really was yet another breakthrough in his life. A very important one and yet again I shared that experience with him, even though I’m thought to be a replaceable commodity and indeed ‘invisible’ according to some over paid idiots working for Social Care.
D.I.Y. means do it yourself and I did and what a relief I’ve finally done my kitchen but there’s just one thing…My son helped and left his handy work for me to fix up. Oh, the trials and tribulations!
He had a seizure and bam I got myself an instant ‘mini’ open plan kitchen unit for free right in the middle of tiles (Luckily at the top). They are all the ‘rage’ you know…He’s started a new kitchen trend wouldn’t you know:)) P.S. it’s copyrighted. And I have always wanted to learn the plastering trade…Do you think it would look good with a LED light strip and a picture of a goldfish?
Anyway besides all that here is my kitchen (almost) finished..Mostly finished?
Yep, I need to tidy up and it’s normal in this house to have a Christmas Tree in the background in June. I have done 22 cupboards and 11 draws. This is just a small part of it. I will show ‘the full affect once I’ve clear up properly. This is just a taster.
and I found myself 1 knob short on another unit (story of my life) so I’ve had to order another one. If only it was always that simple:))
I could do with a new fridge but it’ll have to wait. I think if I get some more fridge magnets I might just get away with it?
Let there be light…I was talked into this one when I needed a new bulb. It’s pretty good as you get all the colours on the pad dim and bright options.
Including a ‘normal’ clear light.
T’other end of the room.
and there’s more…Big Tings happening elsewhere too…More projects in the pipeline.
Exciting Things…I always wanted to be a designer and now I am…
I’ve had a perfect weekend, well as perfect as it can be in the circumstances. I’ve looked after my son for 15 hours a night /day on Friday, Saturday, and Sunday and all week as it goes. I care for him every night of the week. That’s normal for me.
Not only have I done this and it’s pretty intense stuff but I have managed to complete a kitchen project in my home over the past few months (I’ll show it on another blog folks). It’s taken longer than I expected as there is only 1 of me and I have to spread myself out doing a number of ‘duties’ most of the time. I have had other responsibilities including getting a 63-hour package of support for my son up and running successfully.
I wonder though whether it strikes anyone else as odd that not many people like my son are on ‘the outside’ when they reach a certain age. The reason for that is Social Care they make decisions which are very unsuitable for many people with autism/learning disabilities. Many are placed in hospitals and institutionalized after stints in unsuitable supported living which ends up ‘costing too much’ so then the next stage is to ‘lock them up’ and throw the key away. I know there are many who benefit from supported living usually those who are more able, they seem to be the one’s who ‘don’t need’ as much support. Social Services normally under-estimate just how much support is needed until they have ‘acted’ and made ill thought out decisions which are generally based on ‘cost’ and then it’s too late to go back and say sorry.
I had an experience (1 of many actually) when my son was ‘school aged’ where I was ordered to attend an Education special needs Tribunal where the L.E.A forced my son to go to a special needs school which I knew from the past experiences of similar schools couldn’t meet his needs. 3 weeks later they were already saying ‘sorry we can’t manage’ leaving him without any education…Several years after he’d already had no education. How did this happen? Well, they kept excluding him. He was too active and they didn’t know how to handle him. They didn’t ‘care’ to know either as it took too much time. All they cared about was ‘looking like’ they were trying to find an Educational placement for him to ‘satisfy’ the Legal system. They weren’t successful in finding him a placement on and off for 5 long years. They were however successful in ‘getting away’ with their dirty deed though, that dirty deed being leaving him without any Education and leaving him 24/7 in my care without help at all.
Rather spiffing of them wouldn’t you say so?
Funny isn’t it how I’ve been the one who has managed him when I had ‘no training’ in the first place. I have been the one who never failed. It must be because I’m his mother? Actually, that’s not quite it. It’s because I’ve learned how to from a young age because I was left to it in a very cruel way and had to learn ‘how to’ when no-one else would even try to. I’m still managing 31 and a half years later.
No wonder I hate the way I have been treated by ‘the services’…I don’t think they like me either…
This week has been hard work in the form of 15 hrs alone caring every night until 13.00 hrs and also having to deal with a completely idiotic Social Care team who have to be contacted via Acas which is an access point. 10 wrong numbers later via Acas and it turned into an all afternoon job of repeating myself only to be told ‘it’s the wrong department’. Finally, I got through to the right team. All I got from this was a duty worker noting matters down and emailing recommending my son is allocated a Social worker to address issues very outstanding now. I have heard nothing since.
The issues they are reluctant to deal with are:-
- A one-off payment for care needs and reimbursement for the items I was told ‘to buy first’.
- To recalculate my son’s direct payments to include the 15 hrs I have to do myself long-term and authorize under exceptional circumstances that I am also paid for the job I do each and every day.
- That they allocate a grant for a holiday which they agreed within carers assessment to provide.
- That they provide and pay for replacement care whilst I am away on holiday at my own expense September.
In the last few weeks, they have sent me a letter saying my son’s direct payments and care of just 9 hours a day have been reviewed. However, I haven’t been involved in that decision or review. Nothing I have written to them has been even vaguely considered. I also found out the Carers Grant they told me to apply for my holiday has been axed. They didn’t actually tell me where in the world I could take a holiday so I shall book one and send them the invoice and believe me if they don’t pay for it I will complain to the Ombudsman.
I already have a complaint in with the Ombudsman and I have heard a draft copy of the decision will be coming out to me by the end of next week. I have already had an upheld complaint via Ombudsman about the very same complaint. L.A. did not comply with the element of respite and have since only allocated 20 slots of 15 hr care for it over a 2 and a half year period since the decision was made and agreed by LA to provide it, following a further 2 yrs of the absence of respite beforehand and after a specialist HEALTH respite unit stated they couldn’t manage my son and he, therefore ‘lost his placement on that ‘specialist unit’.
This was a ‘specialist unit’ who liked to pick and choose the easier cases for respite only. A unit who allocated respite dates and made me and my son stand outside in the snow being told my son with learning disabilities, Autism and seizures could not come in as his respite had been ‘stopped’ by the new manager. So we both froze outside whilst we waited for transport to arrive to take us back home 8 miles away. Carers had been canceled and I was made to manage my son who requires 24/7 care alone for a week.
That did matter as since my son left the hospital in 2007 a Mental Health Tribunal ordered he must have respite in order for him to be allowed to leave hospital on section 117 into the community. So it was a breach of a tribunal ruling at the time and still is to date. Respite x 60 days per yrs was also ordered by the Tribunal which is, in fact, a Court of Law. Not that it matters to Social Care or Health for that matter. All seems to be ‘forgotten’ just 10 years later or maybe it’s more precise to say…10 minutes later.
Unfortunately, I haven’t forgotten and why would I when they held and deprived my son of his liberties for 17 months in a Hospital on section 3 of the Mental Health Act. whilst waiting for care, respite and day centre to be arranged…He actually had 3 days at a day centre in total in 10 years…They couldn’t manage him either. He put his hand straight through a safety glass wired window whilst having a seizure causing a hospital admission…caused because staff entered a room where it was arranged he went during a seizure. The fools had ‘left someone else’s medication in the room’ and went in when the protocol was NOT TO GO IN whilst my son had a seizure…This was supposed to be a specialist Day Centre…and they removed my son after just 3 days as they were ‘too scared’ to have him back..2 of those days were successful because I went with him. On the third day, they told me I wasn’t needed and to leave as ‘they could manage’…What a pathetic service from HEALTH here in Birmingham UK.
Oh and I won my case with Virgin Media.